This is as for Ceds, with additional care needed for the eyes.
Children with Ceds need to find a balance between restrictions and risks.
Management of pEDS is as for management of hEDS and Ceds but with additional, specialist dental care.
Floppy muscles can be a feature, and children with Ceds may be slow to stand and walk.
This very rare condition is similar to Ceds, except that affected people do not make wide scars.
Tiredness and joint pain can be part of Ceds and regular gentle exercise helps to reduce these effects.
Management is as for Ceds but with regular heart scans and monitoring,
as the heart valves may need repair or replacement.
Management involves the approaches used in Ceds towards skin and joints,
together with specialist physiotherapy as your child grows up- to help maximise their bone growth and strength.